Blind, scared, and needing a kidney.

I Am Second

September 05, 2013 | 5 minute read

I was told I would never make it to see the age of thirty. As a 10 year old child, I was diagnosed with Type I diabetes.

In 1998, I had made it to my Senior year in a very prestigious art school. I was living the life and my diabetes was taking back seat to the independent and chaotic lifestyle I was leading. I was a very talented fashion illustrator. I was motivated, on fire for the fashion world. I knew it was only a matter of time before I broke through. I knew I had great talent and, honestly, I was pretty arrogant about it. I knew the plan that lay ahead of me and nothing was going to get in the way of that… so I thought.

It wasn’t long after that, while in my last semester of school, that I began to notice some subtle, then not-so-subtle, changes in my vision. Everything became blurry and warped and I was seeing something floating in my field of vision. I brushed it off quickly.

“No time for insignificant issues such as this,” I thought. I had a portfolio to put together, a graduation to attend and a plane flight to catch out of Nowhere, Ohio.

I took a vacation with my Mom, which ended in her scheduling me an appointment with our family friend who was an ophthalmologist. As we sat and talked about the old days, he got a terrible look on his face. The next words out of his mouth were words no diabetic ever wants to hear.

“You have severe diabetic changes in the back of your eyes, Amy.”

Those words lingered in the air and then seemed to fall on me like a ton of bricks. “What does that mean?”, barely speaking the words in an audible sound. I knew what it meant. I had read all of the books. I had heard all of the warnings from doctors throughout my life.

It meant blindness.

I was immediately booked with a surgeon and, as he analyzed the situation, he decided to try to do some work to stop some of the bleeding that was going on in the blood vessels in the back of both of my eyes. He started laser work immediately, but warned me that the more laser work he had to do, the more blind spots I would have in my field of vision.

He sent me on my way to wait and see what this treatment would do. Within days, I had lost all vision. The next step was to do a very detailed eye surgery which involved going into the eye and cleaning all of the fluid out. He scheduled me for this and soon I was waking up from my first eye surgery. Another followed for the other eye and amazingly, a form of my vision was back. There were definitely some permanent differences, but I could see. The world was great once again.

This wasn’t the case, as my surgeon sat down to talk to me about some things. He said he believed I needed to see a kidney specialist. In all of his years of training, he saw how this severity of eye problems almost always had a correlation with kidney failure. He was right. I was diagnosed with the beginning stages of kidney failure and yet another journey transpired shortly after.

Dialysis started a whole new realm of reality for me, as I became very sick. The treatments were going terribly, if they were going at all. I was allergic to the very thing that was supposed to keep me alive. Every access they placed for treatment failed. I lost my vision again, due to all the stress of the actual dialysis treatment and being so recently out of surgery. I became very frightened, believing I wasn’t going to make it through this.

It was during this time that I really started to lean on the Jesus. I had accepted Jesus as my Savior several months prior, as I sat in front of a TV by myself with failing vision, but now He was becoming real. I began to realize that He was the only chance I had of making it through this nightmare. If anyone could bring me through, it was Him.

1. Keep A Positive Attitude

I knew in my spirit this was something I was going to have to do if I was going to make it out of the valley. I spent a period of 1 ½ years blind. I had to learn to adapt. I had to learn to look at the positive side of things, even if it seemed there was nothing positive in sight. My sight was gone. This was my reality; however, God left me with a ray of hope in the darkness. I was able to see light sources, so I would pretend the light I saw was Him. That way I always knew He was there with me. Trusting in God in even the worst circumstances is one of the reasons I find the Bethany Hamilton story so inspiring. Check it out if you haven't already.

2. Do Something For Others

While on dialysis, my Mom and I found a mission that we could do together. We became the dialysis center’s welcoming committee. She would decorate and greet the patients and their families, while I put my artistic talents to work. I would make the patients holiday gifts and cards to cheer them up in such a disheartening environment. To see their faces light up gave us both joy and it gave me purpose. Janelle Hail, founder of the National Breast Cancer Association, learned the same through her struggle with cancer. Watch her film here.

3. Let God Use What You Have

We have to allow God to use what we have, no matter how insignificant it may seem. He can multiply whatever we give. Never underestimate the ability of a willing heart. God sees the heart above all else and knows the motives with which we do things and He honors those who are willing to offer whatever they have to honor others. We saw this time and time again in the dialysis unit.

4. Don’t Settle For Mediocrity

It’s only natural to see our abilities and think that’s exactly what God wants for my life; however, that could just be a small portion of the plan He has in store. He can take us on a detour to show us other abilities, stronger abilities and gifts that we ever dreamed possible. Don’t settle for mediocrity and live your life according to what you see for it. Instead, live a life of excellence by allowing God to lead you into the destiny He has chosen for you.

5. Praise Him For His Goodness

No matter what our situations look like, God is good. He is the same yesterday, today and always. His love for us never fails. Even in our darkest times, He is right there, guiding us to our victory, when we allow Him. We have to remember that we don’t see the whole picture of our lives. Our human minds only see a limited scope; however, God sees the whole thing. He sees what is down the road and how He is shaping and molding us to fit perfectly where He wants us. Praise Him in the storm, because on the other side of that storm, you will find your rainbow: A promise He makes to each one of His children to not harm them, but to give them a future. Allow Him to work in and through you. You will never be disappointed. His plan is always the best plan.

Today, I am 10 years post-transplant, with a beautifully functioning kidney (Chen) and pancreas (Miller). I no longer have to be on dialysis and I am no longer diabetic. I am 8 years past the expiration date I was given as a child. I have my eyesight with only minor imperfections. I am healthy and it’s all because of Him. Would I take back anything I have gone through to get where I’m at today? The answer is an emphatic “NO”. I believe everything I’ve been through was for a reason and that reason is to help someone else on his/her journey. There were great difficulties along the way, but by God’s grace, I made it through every valley and now I’m standing on a mountaintop!

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Amy Thase-Jacomet is a double organ transplant recipient who learned through many hardships, that God is the one true and faithful constant in her life. She has learned to be very grateful for life and all of its circumstances, because each and every thing we encounter leads us to a greater level of development where we are able to help others in need. She is a writer, an artist, a lover of life and people and now also a wife. She got involved with I am Second through a simple Facebook post which led to a much deeper level of involvement. Once she became involved, she was hooked.

 
I Am Second

I Am Second

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